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राष्ट्रीय जन्मजात हृदय रोग सर्वेक्षण

सर्वेक्षण अब बंद हो गया है और परिणाम हार्ट लंग सर्कुलेशन में प्रकाशित किए गए हैं। इस परियोजना के परिणामों के बारे में अधिक जानकारी के लिए लिंक का अनुसरण करें।

परिणाम

स्वागत

कॉन्जेनिटल हार्ट अलायंस ऑफ़ ऑस्ट्रेलिया एंड न्यूज़ीलैंड (CHAANZ) की वेबसाइट पर आपका स्वागत है।

CHAANZ ऑस्ट्रेलिया और न्यूजीलैंड के जन्मजात हृदय रोग शोधकर्ताओं का एक संघ है। उनका उद्देश्य जन्मजात हृदय रोग में केंद्रित अनुसंधान को सुविधाजनक बनाना, अधिक संसाधनों की आवश्यकता को बढ़ावा देना और जन्मजात हृदय रोग वाले सभी लोगों के लिए सेवाओं में सहायता करना है।

In the News

The ANZ CHD Registry was recently featured on Channel 9 News. Professor David Celermajer AO, has led the development of the ANZ CHD Registry and Clarissa Pitisikas, Head of Donor Services at HRI and one of Professor Celermajer's patients, spoke to 9News Health Reporter Gabriela Rogers.

पूरे जीवन में जन्मजात हृदय रोग के परिणामों और बोझ का ऑस्ट्रेलियाई व्यापक अध्ययन

जुलाई 2020 में, जन्मजात हृदय रोग के लिए मेडिकल रिसर्च फ्यूचर फंड ग्रांट्स से CHAANZ को फंडिंग प्रदान की गई। इस परियोजना का उद्देश्य जन्मजात हृदय रोग के बोझ और परिणामों को समझना है।

अधिक पढ़ें

Aotearoa New Zealand

The Paediatric and Congenital Cardiac Service based at Starship/Auckland City Hospitals is very pleased to contribute to the CHAANZ Registry collaboration and grateful for the support and endorsement of Heart Kids New Zealand for this project.

At this time, it is only possible to enrol and contribute data from patients from Aotearoa New Zealand who have received inpatient or outpatient care in Te Toka Tumai Auckland (Starship, Greenlane and Auckland Hospitals).

Patient Engagement Study Interviews and focus groups are underway to consult patients on how they feel about their care, key challenges they face, and suggestions for care plan improvements. The purpose of these discussions will be to understand the participants’ impressions of the proposed care plan for transition from paediatric to adult CHD care and ongoing CHD care.	ANZ Congenital Heart Disease Registry The National Congenital Heart Disease survey is the first step towards addressing current research questions and developing solutions to help all patients with congenital heart disease, irrespective of where they sit on the disease continuum.	Outcomes & Burdens for CHD In addition to providing increased resources for the development of the ANZ Congenital Heart Disease Registry, the MRFF funding will also allow CHAANZ to expand its research in to the burdens and outcomes of congenital heart disease. Recruitment is now complete.	National CHD Survey The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease.
Developing the ANZ CHD Registry Developing and optimising the ANZ CHD Registry has been an involved process. Read about some of our published work here.	Our Research A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper.

राष्ट्रीय जन्मजात हृदय रोग सर्वेक्षण

स्वागत

In the News

पूरे जीवन में जन्मजात हृदय रोग के परिणामों और बोझ का ऑस्ट्रेलियाई व्यापक अध्ययन

Aotearoa New Zealand

हमारा शोध

Patient Engagement Study

ANZ Congenital Heart Disease Registry

The National Congenital Heart Disease survey is the first step towards addressing current research questions and developing solutions to help all patients with congenital heart disease, irrespective of where they sit on the disease continuum.

Outcomes & Burdens for CHD

In addition to providing increased resources for the development of the ANZ Congenital Heart Disease Registry, the MRFF funding will also allow CHAANZ to expand its research in to the burdens and outcomes of congenital heart disease. Recruitment is now complete.

National CHD Survey

The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease.

Developing the ANZ CHD Registry

Developing and optimising the ANZ CHD Registry has been an involved process. Read about some of our published work here.

Our Research

A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper.